Crocokids: for children with Crohn’s or ulcerative colitis

Crohn’s and ulcerative colitis. If you receive this diagnosis as an adult, it is already very sad. But there are also children who are told that a chronic intestinal disease will affect their lives from now on. The Erasmus MC – Sophia Children’s Hospital has enriched the Netherlands with a new charity: Crocokids. The idea is to bring together parents and children dealing with Crohn’s or ulcerative colitis, promote scientific research and increase understanding. Crohn’s and ulcerative colitis. For an adult, this diagnosis is already very sad. But there are also children who are told that Crohn’s or ulcerative colitis will affect their lives from now on. And that is extra difficult. Thanks to hospitals that start a ‘charity’, there is fortunately something new to report regularly, even when it comes to patients who are still children. There is now also ‘Crocokids’, with the accompanying website of the same name. In the hope that Crocokids will become a household name in the Netherlands and that more can be done for patients now and in the future, the Erasmus MC – Sophia Children’s Hospital has launched this initiative. The goal is better insight into and therefore more effective treatment of children with Crohn’s and ulcerative colitis. But also bringing people together and cultivating understanding.

Events and advice for child and parent

One of the main purposes of Crocokids is to raise funds – money – for scientific research into Crohn’s and ulcerative colitis. But under the name Crocokids, the Erasmus MC -Sophia Children’s Hospital also organizes events and promotions especially for children and their parents. The goal of Crocokids is to provide more money for much-needed scientific research within the Erasmus MC – Sophia Children’s Hospital, aimed at the cause, treatment, prevention, control and cure of these diseases. In addition, Crocokids makes every effort to provide better information to those who are in the immediate vicinity of these children. For example, teachers and classmates.

The Erasmus MC

Erasmus MC is part of the Dutch Federation of University Medical Centers (NFU). The NFU is a partnership of the eight university medical centers (UMCs) in the Netherlands and its general objective is to promote the joint interests of the UMCs. Other UMCs that are part of the NFU are the AMC, azM, LUMC, UMCG, UMC St Radboud, UMC Utrecht and VUmc. A total of 60,000 employees are associated with the eight UMCs.

 

250 children every year

It is estimated that approximately 250 children in the Netherlands are diagnosed with Crohn’s disease or colitis every year. What does it mean to be diagnosed with one of these intestinal diseases? Ulcerative colitis involves inflammation of the large intestine. If you have Crohn’s disease, the entire digestive tract can be affected by the disease. Anyone who has one of these conditions will experience recurring, unpredictable flare-ups of the disease, which are very painful. Unfortunately, it appears that people with these intestinal diseases experience a poorer quality of life. In worse cases, the condition can lead to various complications. This includes bleeding, anemia, intestinal strictures, damage to the intestine, and in more extreme cases the development of colon cancer or complications as a result of having to take medication for life. Early detection and treatment can help prevent a lot of trouble. But more is needed to understand these intestinal diseases and bring a cure closer.

“Not enough money for research”

Dr. Lissy de Ridder and Dr. Hankje Escher are both pediatricians specializing in gastrointestinal and liver diseases. Thanks to them, the Crocokids initiative came about. In their work, they treat children every day who suffer from the serious consequences of Crohn’s disease or ulcerative colitis. De Ridder: Research into causes, treatment and cure provides better insight into the diseases. There is little money available for this type of research, which is why we looked for alternative sources. Crocokids will help us do even more research in the future.

Learn more about Crocokids

All information about this charity is available at www.crocokids.nl . Crocokids is also active on Facebook, Twitter and Hyves. Crocokids collaborates with the Friends of Sophia Foundation.

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